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The hemophilia court case, 11 years on

“When it’s all too late”, a documentary describing the events surrounding the contaminated blood scandal and the case of the Hemophiliacs was screened last summer. The film is directed by Naghme Afiat, a young visually disabled female director and has won recognition in the recent Iranian Documentary Film Festival.

Abstracts of Presentations at Esfahan International Hemopilia Seminar

April 19th , 20th

Abbasi Hotel, Esfahan, Iran

The Iranian ministry of health has named the Coagulation Labs at the Iranian Comprehensive Hemophilia Care Center as a National reference Laboratory in a new project set out to reassess Iranian hemophilia patients.

Since 1989, patient groups and treatment centres have been coming together on April 17 to celebrate World Hemophilia Day. Over the last 20 years, World Hemophilia Day has become a unique opportunity for all our partners to work together to increase awareness about hemophilia and other bleeding disorders

The vision of the WFH Psychosocial Committee is to improve quality of care for people with bleeding disorders and to increase their quality of life by making psychosocial care an integral part of a multi-disciplinary approach to healthcare.

This November the World Federation of Hemophilia took the much anticipated step to bring together National Member organizations from the Middle East and North Africa to ponder on an issue that has the potential to change hemophilia care significantly in the region.

Despite the fact that last year over 400 hemophilia patients were treated with peg-interferon as part of a widespread cirrhosis prevention campaign, the waiting lines are getting longer and longer.

In an article published in Etemad-e-Melli daily the eleven year history of the contaminated blood case was reviewed.

In a detailed monologue on the Persian section of Zendegimagazine.com the IHS vice-president Sabri Naqashian takes a strategic look at the problems facing the Iranian Hemophilia Society (IHS).

The holy month of Ramadan brings with itself a sense of philanthropy.
 
International Hemophilia Seminar to be held in Isfahan

The second regional seminar backed by the World Federation of Hemophilia, will be held in Isfahan, Iran on 19th and 20th of April 2009. Prominent Specialists active in the field of hemophilia are scheduled to appear at this two-day event from Iran, United States, Canada, Great Britain, Ireland, France and Germany.


  
25 Last News  
Screening of a documentary on “the Case of the Hemophiliacs”
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Abstracts of Presentations at Esfahan International Hemopilia Seminar
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Care Center receive recognition as a National reference Laboratory
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Celebrating 20 years
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Psychosocial Committee Roles and Responsibilities
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WFH Middle East NMO advocacy Initiative
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What to do for patients with refractory HCV infection?
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International Hemophilia Seminar to be held in Isfahan
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The hemophilia court case, 11 years on
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strategic planning within the IHS
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The role of the board of directors in systematic thinking and Fundraising during Ramadan
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Choose Words Carefully
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The Ministry of Health must disclose names of responsible authorities
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Patients’ representative in the Hemophilia case offered a plea-bargain based on previous court rulings
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Through an Order by the Minister of Health, 171 Hemophiliacs will receive compensation by the end of this month
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A Survey on Prevalence of depression in hereditary hemorrhagic disorders
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Arjan Ala Charitable Trust
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WFH president thanks the Iranian President
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The IHS Portal is on its way
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IHS services throughout Iran
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IHS Expresses Concern about Factor Shortage
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Factor is not enough!
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Commemorating the deceased, Remembering the Responsibility
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Carriers of Hemophilia, The silent crowd
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The president’s positive reply to two requests by the Iranian Hemophilia Society
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