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Psychosocial Committee Roles and Responsibilities
Posted :
يکشنبه 27 بهمن 1387 - 14:28
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Members (2008-2010)
Chair: Sylvia von Mackensen (Germany)
Vice Chair: Richa Mohan (India)
Secretary: Anne Duffy (Ireland)
Ruud Bos (Netherlands)
Frederica Cassis (Brazil)
Susan Cutter (USA)
Silvina Graña (Argentina)
Edward Kuebler (USA)
Taheri Noorallah (Iran)
Tony Roberts (South Africa)
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Vision
The vision of the WFH Psychosocial Committee is to improve quality of care for people with bleeding disorders and to increase their quality of life by making psychosocial care an integral part of a multi-disciplinary approach to healthcare.
Aims
• Raise awareness of psychosocial issues that affect people with bleeding disorders and their families
• Advocate globally for comprehensive care
• Ensure psychosocial participation in multidisciplinary hemophilia care teams
• Provide support, information, and contacts for psychosocial workers
Goals
• Create network of psychosocial workers
• Build database of relevant literature for psychosocial workers
• Implement psychosocial database online
• Gather and disseminate information of ongoing studies
• Produce literature & encourage research on psychosocial aspects
• Provide input at conferences
• Develop psychosocial programs
• Provide support in hemophilia care
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