We believe:
With the help of benefactors we can improve hemophiliacs’ quality of life.
The Iranian Hemophilia Society (IHS) is a nongovernmental, nonprofit, nonpolitical, charity organization and a member of the World Federation of Hemophilia (WFH). With the help of volunteers we have been active in improving the quality of life for patients with hemophilia and other congenital bleeding disorders since 1967 through offering pharmaceutical, therapeutic, social, educational, preventive, and legal support and also supporting research and development. We believe that alongside scientific centers, watching over the safety and quality of blood and blood products is an important part of our quest. The Iranian Hemophilia Society, while maintaining patients’ integrity and organizational transparency, and by insisting on philanthropic morale among civilians, the government, and the private sector, paves the way so that hemophiliacs too can play an active and productive role in the society.
Zendegi magazine is the national quarterly bulletin of the Iranian Hemophilia society. We focus on social and scientific issues and while being an informative base for patients, physicians and specialists, try to introduce the problems facing hemophilia patients to the general public.
Through the years alongside offering services to patients with hemophilia, the Iranian Hemophilia Society has accomplished several prominent achievements including:
1. The establishment of the Iranian Comprehensive Care Center located on Zartosht-Felestin cross in 2001. This center is empowered with a comprehensive, advanced and up-to-date patient’s database, and offers all its services including diagnostic and genetic laboratories, physiotherapy, dentistry, orthopedics, infectious diseases, and psychiatry clinics, and genetic counseling free of charge to patients with hemophilia.
2. Arbitration of the case of patients with hemophilia infected through blood products in the favor of patients. 974 patients have received compensation while the second court verdict concerning 171 patients awaits implementation, and 1400 new cases have been initiated in the judiciary system.
3. The establishment and furnishing of the patients’ dormitory with a capacity for 40 occupants in Tehran, sheltering patients from other cities seeking medical attention in the capital. Due to the fact that over 50% of patients attending the treatment center reside in other cities, this dormitory plays an imported role in serving persons with hemophilia.
4. Amendment of the IHS constitution in 2005 intended to increase patients’ contribution in determining IHS policies, future programs, and selection of managers, and also upgrading the inspection division from a single inspector to the board of inspectors plus an auditory firm selected by the general assembly. This new constitution guarantees the organizational and financial transparency of this charity organization.
«Today more than ever we need the public’s valuable assistance in serving the patients in need»
The Iranian Hemophilia society believes that without the financial and spiritual support of volunteers serving the patients would be impossible. Benefactors seeking to help patients with hemophilia can contact our offices in Tehran, Karaj, Sari, Rasht, Shahrood, Khorramabad, Bushehr, Shiraz, Esfahan, Ahvaz, Kermanshah, Kerman, Tabriz, Orumieh, Ardabil, Gorgan, Hamadan, Arak, Yazd, Yasuj, Zanjan, Birjand, Dezfool, Bandarabbas, and Qom. You can find more information about our offices by contacting our headquarters.
Headquarters of the Iranian Hemophilia Society: www.ihs.org.ir
#5 Shahid Abbas Shafiee ave., Vesal Shirazi st. , Tehran, Iran
Phone: +98-21-66408606, 66408503, 66491897, 66466398
Iranian Comprehensive Hemophilia Care Center: www.chcc.org.ir
#101 Zartoshi-Felestin corss, Tehran, Iran
Phone: +98-21-8889742-4, 88910001-3
Patient’s dormitory is located at the headquarters.
